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重要医学免责声明：这仅为我个人的经历，不应被视为医疗建议。未经您的风湿病专家密切监督，请勿停止、更改或调整您的药物。自身免疫性疾病很复杂，具有个体差异，如果管理不当，可能具有潜在危险性。我的情况可能不适用于您，甚至可能有害。请务必与您的医疗保健提供者合作。毕业后几年，我开始工作，并患上了自身免疫性关节炎。我的医生建议——我也相信——我的关节炎是由工作压力引起的：“考虑减少工作量以控制您的关节炎。”但现在我正在创业。我需要工作更多，而不是更少。这造成了一个真正的问题。更大的问题不是关节畸形或疼痛，而是免疫抑制剂药物。由于我的免疫系统受到抑制，我很容易生病，而且经常生病，恢复时间也更长。当您经常生病时，尝试创业。尝试在免疫系统虚弱的情况下旅行。几年前，我经历了一次无法解释的缓解。我的医生检查了我的血液检查结果，确认了我的缓解，并让我停止了用药。考虑到这一点，我开始更加关注什么能让我的症状好转或恶化。过了一段时间，我注意到了一些奇怪的事情：在星巴克工作似乎会引发特别强烈的发作。我的风湿病专家立即重新开始给我用药。最后一根稻草是，我重新服用的药物似乎已经失去了效力。即使我的免疫系统变得越来越弱，我的关节炎仍然会复发。由于我无路可走，而且经常无法工作，我需要尝试一些不同的方法。经过一些实验，我发现了一些令人惊讶的事情——一旦我停止喝咖啡、茶和橙汁，我的症状就消失了。我还注意到，不吃酸性食物（番茄酱）并且没有胃灼热也改善了我的症状。一旦我消除了这些饮食嫌疑，我的症状就迅速改善了。我的风湿病专家让我完全停止了用药，因为我的血液检查显示没有炎症。我已经缓解了一年，并定期监测。我的免疫系统似乎已经恢复——我不再经常生病了。这让我能够专注于我的早期创业。以下是我仍然感到困惑的地方：我现在每周 7 天、每天 24 小时工作，压力很大，但我的关节炎仍然处于缓解期。我的医生最初建议压力是一个诱因。就我而言，似乎可能不是压力本身，而是从学生到专业人士的转变带来的生活方式的改变——特别是，开始定期喝咖啡和茶。当然，我无法确定这一点。再次强调：这只是我个人在特定关节炎病例中的经历。您的疾病有所不同。您的治疗方法也应该有所不同。请与您的医生合作。

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IMPORTANT MEDICAL DISCLAIMER: This is my personal experience only and should NOT be taken as medical advice. Do NOT stop, change, or adjust your medications without close supervision from your rheumatologist. Autoimmune diseases are complex, individual, and potentially dangerous if not properly managed. What happened in my case may not apply to yours and could be harmful. Always work with your healthcare provider.I developed autoimmune arthritis a few years after graduating and starting work.My doctor suggested—and I believed—that my arthritis was triggered by work stress: “Consider working less to keep your arthritis under control.”But now I’m building a startup. I need to work more, not less. This created a real problem.The bigger issue wasn’t the joint deformity or pain—it was the immunosuppressant medications. With my immune system suppressed, I got sick easily and frequently, and recovery took longer.Try building a startup when you’re frequently ill. Try traveling with a weakened immune system.Years ago, I’d experienced an unexplained remission. My doctor checked my bloodwork, confirmed my remission and took me off the meds. With that in mind, I started paying closer attention to what made my symptoms better or worse.After a while, I noticed something odd: working at Starbucks seemed to trigger especially strong flares. My rheumatologist restarted my meds immediately.The final straw was that my renewed medications seemed to have lost their effectiveness. My arthritis kept flaring even as my immune system got weaker. Running out of options and frequently unable to work, I needed to try something different.After some experimentation, I discovered something surprising — my symptoms went away once I stopped drinking coffee AND tea AND orange juice. I also noticed that not eating acidic foods (ketchup) and not having heartburns also improved my symptoms.Once I eliminated these dietary suspects, my symptoms improved rapidly. My rheumatologist let me off the meds completely as my blood tests showed no inflammation. I’ve been in remission for a year now, with regular monitoring.My immune system seems to have recovered — I’m no longer getting sick frequently. This has allowed me to work on my early-stage startup.Here’s what I still find puzzling: I’m now working 24/7 with considerable stress, but my arthritis remains in remission. My doctor had originally suggested stress was a trigger.In my case, it seems possible that it wasn’t the stress itself, but rather the lifestyle changes that came with transitioning from student to professional—specifically, starting to drink coffee and tea regularly. Of course, I can’t know this for certain.Again: This is my individual experience with my specific case of arthritis. Your disease is different. Your treatment should be different. Work with your doctor.

我如何管理我的病情（缓解期），以便专注于我的创业