零散的病历延误了数月的治疗。
1 分•作者: topavocadown•8 个月前
几年前，我全家人的健康记录因为数据泄露被盗。从那以后，我就一直对健康数据碎片化的问题耿耿于怀。
此外，我的叔叔去土耳其接受酒精成瘾治疗。治疗开始前花了几个月的时间，因为他的医疗记录分散在不同的医院和系统里。医生无法访问他的完整病史，这延误了他最需要的治疗。
我对此非常恼火，深入研究后发现，这个问题竟然非常普遍。他们出售我们的数据，数据被黑客攻击，我们很难在未经我们同意的情况下访问和使用这些数据，而且研究人员也受到了影响。这一切都源于这些机构和大型制药公司。我知道现任政府宣布要把我们的所有健康记录整合到一个地方，但这很难让人信任。
所以我决定创建一个方法，让我们所有人都能把自己的记录放在一个加密的保险库里。当有人（医生、研究人员和运动实验室）请求访问时，你可以授权访问，并因此获得奖励。最重要的是，你还可以控制和拥有这些数据。
请告诉我如何改进，如果你有任何问题，以及这是否引起了你的共鸣。
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My whole family got our health records stolen through a data breach a few years back. Since then, I've been obsessed with the problem of fragmented health data.
Plus, my uncle traveled to Turkey for alcoholism treatment. It took MONTHS to get started because his medical records were scattered across different hospitals and systems. Doctors couldn't access his full history, which delayed care when he needed it most.
I got really pissed off and when I went down the rabbit whole of research, turns out this problem was freaking common. They sell our data, it get hacked, it's hard to access and practically use it in any way without consent from us and on top of that researchers get affected too. All because of these institutions and big pharma. And i know the current adminitration announced having all of our health records in one place but that hard to trust.
SO I decided to create a way we can all have our records in one encrypted vault and when someone(doctors, researchers and sport labs) request access, you can license access and get incentivized by doing so.On top of that you also control and own it.<p>Please tell how I can improve this, if you have any questions and wether or not it resonates.